Notes of Hope for September

Wings of Hope: A Butterfly Release

Saturday, September 9, 10:30-noon

Glorious butterflies, music, kids' stuff, and time for bittersweet memories

Butterfly Garden, Cedar Crest College, Allentown

National Blood Cancer Awareness Month
Read the Sheriff's Story.

The Sheriff's Story
 

"I am an average, normal person with three kids and a job. I want everyone to know you can do this if you believe in yourself." ~ Sheriff Todd Martin

 

Sheriff Martin with Jared, Kelli, and Karli

Thirteen years…time enough to watch his daughter Kelli turn from a child to a college student; his son Jared to graduate from college; and his daughter Karli to marry and have two children. Thirteen years of fortitude, hope, some depression, faith, determination, thanks, and overwhelming love. Thirteen years to go from a healthy young man to a middle-aged man with multiple myeloma.

Sheriff Todd Martin was 45 when great fatigue and chest and rib pain gripped him. Still, he kept up his job as Monroe County sheriff and his community activities as coach, firefighter, and scout leader. His doctor passed the symptoms off as part of aging. But they persisted, and one night, six months later, as he lay in bed with his wife, he heard clicking: every time he took a breath, he heard his ribs move.

The Sheriff’s Story continues here.


Really, Really Relevant

Negotiating cancer: tips from one who’s done it (Washington Post, 5/28/17)

Promising new therapeutic approach for multiple myeloma (Science Daily 6/17)


Notes from the Program Director
Let’s get personal…Many people feel too embarrassed to bring up sensitive medical concerns with their doctor. Talking about certain body parts, ailments, and issues around sexual function can feel taboo. But even though these concerns are underreported, people generally want to and need to talk about them. We offer a safe space to do just that. Join us for two important upcoming programs:

• Improving Your Pelvic Health with Karen Snowden, PT, DPT, WCS-Tue., Sept. 19, 11 am
Sexuality/Intimacy discussion with Carole Moretz, Ph.D-Wed., Sept. 20, 1 pm

You can find additional resources at www.sexhealthmatters.org and
www.livestrong.org/we-can-help/finishing-treatment/female-sexual-health-after-cancer

To locate a sexual health counselor or therapist with expertise in treating cancer survivors, contact either the American Association of Sexuality Educators, Counselors, and Therapists (202-449-1099) or visit the Society for Sex Therapy and Research (847-647-8832).

Regards,
Jen Sinclair, program director

 


Hello from the Exec Director
A gigantic, maroon motorcycle zoomed by my car with such vigor and intensity, I couldn’t help but glance at the woman riding it. Her black hair whipped around her helmet, and the air seemed to streak across her face. I was immediately transported back to when I had no hair, and the wind tickled my head. It wasn’t a luxurious time, like the one she seemed to be having, but the memory caused me to reflect. I have overcome so much in the last 11 years; I have had cancer 10 times. (But great things have happened too!)

I watched the woman dig her boot tips into the road to brace herself, and chuckled at two metaphoric similarities between cancer and biking: balance and big heavy things. Just as that woman worked to maintain balance, I worked to balance a lot, too: family, job, disease, and household. And just as that woman learned to control a huge, weighty motorcycle, I, too, learned to control the huge weight of cancer.

I’m not sure why Ride for Hope started, but I see that it’s a good fit metaphorically. And because bikers tend to support a lot of causes, I’m very grateful many of them have chosen us. I look forward to greeting them all.

Do you ride? If so, please join us. Do you know people who do? Please tell them about the Ride for Hope on Saturday, Sept. 30 at Bicentennial Park in Bethlehem. We’ll have lunch, good music and raffles, and kick the starter—metaphorically speaking.

Yours,
Amanda Buss, executive director


Hey, volunteers…
Got some time for us?  

Host our information tables at

  • Bike Fest-Sept. 16, 1-7 pm (Nazareth-Bath Regional Chamber of Commerce)
  • Bling Your Bra Charity Auction and Health & Wellness Expo-Oct. 25, 6 pm-9 pm (Bethlehem)
  • Eight Oaks Barn Raising Fundraiser-Oct. 26 (New Tripoli)
  • Truck or Treat Festival-Oct. 28, noon-4 pm (Nazareth)

Help make magic at our very own events

Email Deb Post or call 610-7555, ext. 39


Getting By
Tips from other survivors and healthcare professionals to make your journey easier.

Upset stomach from chemo? Try
- ginger a few days before and after treatment

If dinner’s a chore during treatment, try this cookbook:
- What to Eat During Cancer Treatment: 100 Great-Tasting, Family-Friendly Recipes to Help You Cope by Jeanne Besser, et. al. Organized by side effect, recipes combat some treatment side effects. Thanks to a cancer survivor for this tip.

Have a tip? Let us know.


Dishing It Out
Eating right before, during, and after cancer treatment can help you feel better and stay stronger. For more: National Cancer Institute

August recipes from Prevention Magazine
More protein, fewer carbs…a new take on Italian food.

Rustic Breakfast Pizza


Spaghetti Squash and Meatballs

   

www.cancersupportglv.org
610-861-7555


Did You See This?
Links to important news about cancer.

Too many cancer drug trials, too few patients (The New York Times, 8/12/17)

In melanoma, personalized treatment vaccines show promise (National Cancer Institute, 8/4/17)

For kids with cancer, focusing on quality of life (The New York Times, 7/27/17)

FDA grants full approval to blinatumomab for acute lymphoblastic leukemia (ALL) (National Cancer Institute, 7/25/17)


On the Lookout
What's coming up.

Counting the days 'til Wings of Hope-Sept. 9, 10:30-noon (Butterfly Garden, Cedar Crest College, Cedar Crest Blvd., Allentown) with its mystical butterfly release, kids' games and toys, music, and sun (we hope).

Get out that blown bike-and take off at the Ride for Hope-Sept. 30, 9:30 registration, 11:00 ride (Bicentennial Park, Bethlehem) 

Conferences that might pique your interest

Rejuvenate: A Holistic Approach to Ovarian Cancer Conference-Sept. 15 (Blue Bell, PA)

Susan G. Komen 2nd Annual Metastatic Breast Cancer Symposium-Sept. 16 (Philadelphia)

PA Breast Cancer Coalition 2017 Conference: Shaping the Future of Breast Cancer Care and Survivorship-Oct. 6 (Harrisburg)

Penn Medicine’s Focus on Precision Medicine – 23rd Life After Breast Cancer Conference Program-Oct. 13 (Philadelphia)

Young Survival Coalition–National conference for young women and co-survivors affected by breast cancer-Feb. 23-25, 2018 (Orlando)


Helping Out
Will you lend a hand?
Who do you remember fondly, who do you honor respectfully? Buy a butterfly to pay tribute to someone you love and help the Cancer Support Community maintain its free support and education programs.

Working Out
Most studies show exercise reduces the incidence of many cancers, and, after diagnosis, may improve survivorship and quality of life. For more: National Cancer Institute

Before you start exercising, make sure your healthcare provider gives you medical clearance. Once you have received clearance, design a plan that you enjoy and won’t cause an injury or aggravate an old one.

Chair yoga for osteoporosis caused by cancer treatment (The New York Times, 8/10/17)

Here are some examples of chair yoga   


Hanging Out
What to watch, read, and craft.

We love

-watching Last Tango in Halifax (poignant charmer: two 70+ year-olds, their families, and lots of secrets)

-reading Option B by Sheryl Sanberg (whose husband unexpectedly died while on family vacation

-creating bacon candles (if you can fry and pour, you make these)

Have a tip? Let us know.


Foundation & Corporate Supporters—thank you for helping us complete our mission:

to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. We help people affected by cancer actively engage in their health care, connect with others, reduce stress and isolation, and restore hope for a better quality of life.

Foundations & Corporate Sponsors

Air Products

Air Products
Air Products
KNBT

Highmark Blue Shield Hospital central Services Ironton Global Ironton Global Lehigh Valley Health Network
Liberty Property Trust Women's 5K Classic
The Hartford Teva Pharmaceutical Industries Ltd. Teva Pharmaceutical Industries Ltd. Women's 5K Classic    
Bethlehem Business Forms LLC
Blue Star Screen Printing
Boutique At The Rink
BSI Corporate Benefits, LLC
Blue Star Screen Printing
Burkholders HVAC
Cancer Support Community Headquarters
Fragrance Manufacturing, Inc.
Girling Foundation
Henry C. Trexler Trust
Hogan Social Club of Allentown
Jaindl Farms LLC
J's Run
Lehigh Valley Community Foundation
 
Leona Gruber Charitable Trust
Phoebe Ministries
Saucon Valley Country Club
Stauffer Insurance Group
Sylvia Perkin Perpetual Charitable Trust
The Bill Sugra Memorial Fund
The Century Fund
The Charles Hoch Foundation
The Fleming Foundation
The Vollrath Foundation
Trumbower Hospital Foundation, Inc.
Waste Connections Inc.
Weintraub Family Foundation
 
 

Society of Hope
($1,000+)

John and Shirley Biggar
Malcolm and Rebecca Briggs
Dean Browning
Robert Cawley
Eugene and Janice Connell
Dan and Jennifer Eck
Robert and Susan Gadomski
Bruce Getz
Cathy Holmes
David and Pam Kennedy
Mary Lampietro
Clarence and Suzanne Mason
Joseph and Bonnie McAndrew
Daniel and Lucindalea McCarthy
Shawn Pail
Don and Diana Patt
 
Douglas and Georgine Patt
Joan Paul
Lance and Deborah Post
John and Laura Quarmley
J.B. Reilly and Kathleen Waterbury Reilly
Claire and Herman Rij
Jay and Jan Ruhle
Judith Savchak
James Tanenbaum and Elizabeth Scofield
Michael and Krisann Seislove
Mark Sivak and Amanda Buss
W. Cordes and Kim Snyder
W. Jay and Paulette Stiver
Ralph Teti
Charles Tuskes
Bruce Waldman

This list begins at the $1,000 support level.